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| Signing “Mom” for the first time. |
When she was learning to communicate, we played “Signing Time” DVDs constantly. Children with Down syndrome are born with low muscle tone. Our tongues are just a muscle that we learn to manipulate to form specific sounds, most of which when combined, form into words. Because she lacked control over this necessary speech tool, yet was wanting to interact with those around her, we surrounded her with opportunities to learn. Learn is exactly what she did. Not only did she gain around 400 signs but she observed and identified her written alphabet as well. It is a little surprising when you special needs child points to a wall in her sibling’s school and announces “H” and is correct. After naming a few more letters I found she had a skill I had not been practicing with her. It was all due to emulation.
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| The mirror and our friend |
Even when she is all by herself she emulates. Jillie, as with many who have Down syndrome, is enthralled with her reflection. Early on in her speech therapy career we learned she would not actually speak to her therapist. Give her a mirror, or any other shiny item, though and it was difficult to keep her quiet. Our solution, mount a full length mirror sideways beneath a window. That provided enough room for Jillie, her therapist as well as any brother or sister who chose to accompany them. I have some great mirror stories and uses I will post at a later, reflection specific, date.
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| Christmas Morning |
Often times Jillie watches what people are doing around her and links a response to an action, but she doesn’t quite know why the action elicits the response. Take Christmas morning a few years ago. Jillie was three at the time and her brothers and sisters were excitedly opening their gifts. She learned the expression of amazement. The only thing is, she would tear one strip of paper off of her present, revealing a minute portion of the package beneath, and respond, mouth and eyes wide open. She had no idea what was in the box but she knew what to do. Laughing right along, we all then chose to respond in a like manner.
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| “The Cup Song” in Irish Gaelic |
Being the youngest of six, Jillie spends a lot of time watching her brothers and sisters. That in itself is great therapy, she wants to be just like them. She tends to pick up on what is trending with them. I have watched Jillie compete in “Just Dance”, row an erg (rowing machine), and attempt a scooter all from observing her siblings in action. One of my favorite things to watch is Jillie and her red Solo cup, while she is watching a YouTube video of the song that has all the world’s preteens and teens tapping and twirling the popular drinking device.
